Bed Ridden. NEED Dr advice. New to Forum.

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This topic contains 37 replies, has 7 voices, and was last updated by  wonderlover 5 years, 7 months ago.

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  • #111883

    wonderlover
    Member
    Topics: 4
    Replies: 22

    I’m going to try and keep this short and sweet.

    When i was a baby I had oral thrush VERY BAD.

    In my early 20s i had a BAD diet of lots of sugar, lots of stress, and a mouth filled with amalgam fillings.

    around 2003 i started having BAD bouts with nausea and stomach issues.

    I started having fogginess, vertigo, neurological issues and such. I finally went to a D.O. who told me I had candidiasis. After spending THOUSANDS of dollars on treatments and such, it got to a point where i could tolerate the symptoms but ive felt shitty ever since.
    Battling Anxiety and Panic attacks too.

    In Dec 2011 i came down with a bad stomach issue that lasted over a year. Had upper endoscopy. nothing.
    Went back to DO and did blood test for candida. She said my levels were over 2x’s normal level of antigens. I took that to my GP and he told me to my face that was horse shit.

    In Dec 2012 I became bed ridden with severe dizziness, nausea, headaches, fogginess, neuro issues, anxiety, confusion, etc etc.
    I’ve seen the BEST and I mean the BEST Dr’s in California and after MONTHS of tests … its all come down to them saying it must be a brain chemistry issue (stress and anxiety and panic disorder).

    I constantly have a “sick, rotten” feeling in my gut and my tongue is always coated white. Of course regular MD’s laugh at you when you mention candida but i just can’t seem to get better.

    I just started (after FIGHTING TOOTH AND NAIL) an anti-depressant to see if that helps clear some stuff up but I just have this feeling deep inside that there’s GOT TO BE an answer somewhere. Like maybe I’m allergic to something or my gut is poisoning me.

    Is there ANYONE who can recommend a DR in Orange County or even direct me on WHAT to test for … how to test …. maybe at home allergy testing? There’s TOOOO much info to read and TOO many “opinions” on the matter and I feel like there’s a new “cure” or something around every turn.

    I’m looking for a DEFINITIVE answer on what the heck is going on. I’m constantly dizzy and foggy and stomach issues and can’t function. I’ve lost my job, my girlfriend, and feels like my sanity but i feel like SOMETHING is going on.

    If ANYONE has any drs or links to tests or WHERE to get definitive testing done … I’d be MORE than grateful.

    thank you!

    #111884

    raster
    Participant
    Topics: 104
    Replies: 6838

    Here are the tests I recommend:
    http://www.candidaplan.com/store/Candida-Testing/

    I think Dr. Mcoombs is in california, you could hit him up. The only problem is that he promotes consuming fruit and bad foods that can set you back.

    -raster

    #111889

    wonderlover
    Member
    Topics: 4
    Replies: 22

    I appreciate the link. I will check all this out.

    I have to be honest in that I’m seeing a LOT of Chiropractors touted as Dr’s and Specialists in this field.
    While I don’t want to berate anyone and respect everyone’s profession … but it’s been known that DC’s are very well known to push and promote things that aren’t exactly well respected in the Medical profession.

    My Gastro did an upper endoscopy in Dec 2011 and found nothing. I went in to see her a few weeks ago and told her all my symptoms. I yawned and she saw my tongue and said “let me see your tongue”. She wanted to do ANOTHER upper endoscopy and lower endoscopy. I DONT want to pay for that AGAIN nor go through it.

    I have also read that blood tests (from Dr Weil’s website) for allergies are not reliable. The only reliable tests are skin tests.

    I don’t want to chase a rabbit down a hole but that’s what I feel like is happening looking up all this Candida stuff.

    #111890

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    I would strongly encourage you to look into mercury poisoning from your amalgam fillings as the root cause of your health problems.

    Andy Cutler’s book, Amalgam Illness Diagnosis and Treatment, should be incredibly enlightening for you. You might want to check out the reviews on Amazon to see that I’m not the only one that holds this book and Cutler in such high regards. Here’s the amazon link:
    http://www.amazon.com/Amalgam-Illness-Diagnosis-Treatment-Better/dp/0967616808

    This website should also be very informative for you:
    http://www.livingnetwork.co.za/chelationnetwork/chelation-the-andy-cutler-protocol/

    I’m sorry to hear about your troubles and I empathize with the feeling of going down the rabbit hole. Hopefully this post will save you a lot of searching.

    #111891

    wonderlover
    Member
    Topics: 4
    Replies: 22

    Thomas … thank you for your time and input. Its MUCH appreciated.

    A few years ago I had all my amalgam fillings replaced (minus 2 in my very back teeth) AND did chelation therapy. All at Whitaker Wellness Institute.
    After the chelations i did another blood test and the mercury wasn’t detected.

    But I’m still sick. It seems this thing has come back in FULL FORCE and I can’t figure it out.

    My symptoms are more in the head (nausea, dizzy, neuro, etc) but as I stated before … no significant diagnosis. I do feel oddness in my ears which I know is the true cause of vertigo but I’ve seen the best ENT’s and Neuro Otologists in the state and I don’t have “true” vertigo issues.

    meh

    #111895

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    wonderlover;50412 wrote: Thomas … thank you for your time and input. Its MUCH appreciated.

    A few years ago I had all my amalgam fillings replaced (minus 2 in my very back teeth) AND did chelation therapy. All at Whitaker Wellness Institute.
    After the chelations i did another blood test and the mercury wasn’t detected.

    But I’m still sick. It seems this thing has come back in FULL FORCE and I can’t figure it out.

    My symptoms are more in the head (nausea, dizzy, neuro, etc) but as I stated before … no significant diagnosis. I do feel oddness in my ears which I know is the true cause of vertigo but I’ve seen the best ENT’s and Neuro Otologists in the state and I don’t have “true” vertigo issues.

    meh

    So you underwent chelation while you still had amalgams in your mouth? It’s no wonder you are bed ridden right now. If you chelate without removing ALL of your ongoing sources of mercury you are guaranteed to get much worse. Instead of pulling mercury out of your bodily tissues for excretion you were pulling mercury out of your amalgams into your bodily tissues, making you more poisoned. I’m very sorry you had to go through that.

    I’m assuming also that you had IV chelation? IV chelation is not only ineffective, but can be very harmful as well.

    I understand wanting to get a definitive diagnosis to work from, but I can say pretty confidently that you have a mercury problem. You should know that blood tests are notoriously unreliable when checking for mercury toxicity as blood tests only measure the mercury in the blood at the time of testing, not the levels of mercury within your bodily tissues. Because of this, blood tests are only good for diagnosing a recent, acute exposure.

    The best way to diagnose chronic mercury poisoning is via a hair test. Cutler’s book Hair Test Interpretation explains how to go about doing this. Here’s the amazon link for that: http://www.amazon.com/gp/product/0967616816/ref=s9_simh_gw_p14_d0_i4?pf_rd_m=ATVPDKIKX0DER&pf_rd_s=center-2&pf_rd_r=01PPXJFGPFS8WZS8RFEE&pf_rd_t=101&pf_rd_p=1630083502&pf_rd_i=507846

    #111899

    wonderlover
    Member
    Topics: 4
    Replies: 22

    no. chelation was in 2006. Amalgam removal around 2007 i think.

    I had oral chelation.

    All of the “mercury toxicity” stuff happened years ago.

    A LOT of places … I mean A LOT of places i’ve read have said just the opposite … that blood tests are the ONLY reliable test for heavy metal toxicity and hair tests are extrememly unreliable. Just a simple google search brings up hundreds of conflicting reports. And what’s even more frustrating is that the highest rated Neurologists in my state completely negate the idea of mercury toxicity. who knows what to believe.

    #111904

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    wonderlover;50420 wrote: no. chelation was in 2006. Amalgam removal around 2007 i think.

    I had oral chelation.

    All of the “mercury toxicity” stuff happened years ago.

    A LOT of places … I mean A LOT of places i’ve read have said just the opposite … that blood tests are the ONLY reliable test for heavy metal toxicity and hair tests are extrememly unreliable. Just a simple google search brings up hundreds of conflicting reports. And what’s even more frustrating is that the highest rated Neurologists in my state completely negate the idea of mercury toxicity. who knows what to believe.

    Even oral chelation is harmful when you still have amalgams in your mouth.

    I understand that there’s a lot of conflicting information out there. To be honest, it’s a very time-consuming and frustrating process trying to sift through all of the information out there in an attempt to find the truth. It doesn’t help that most of us are sick and brain-fogged while trying to do all this.

    Really, you can’t take any one person’s word for it, including mine. Ultimately, it’s up to you to weigh different opinions and advice and come to your own decisions. I will say though that the vast majority of mainstream doctors are incredibly ignorant when it comes to mercury toxicity. Even most alternative/holistic docs don’t know how to properly treat it, hence all the bad protocols like IV chelation out there.

    #111906

    wonderlover
    Member
    Topics: 4
    Replies: 22

    I was treated by a D.O. who’s clinic deals in chelating….that’s sort of their “thing”.

    I’m wondering if anyone else has dizziness and ear issues with candida. It’s debilitating.

    I’m all for trying to find some natural supplements that have been PROVEN to help kill excess Candida … but if Candida is necessary in your gut, how MUCH do we kill off?

    And what probiotics do you recommend? These things get expensive!

    #111907

    wonderlover
    Member
    Topics: 4
    Replies: 22

    FYI …I’m NOT trying to be combative at ALL. I, like many other people here I’m sure, have been severely ill and am trying to find TRUTH and answers. And my body has been through so much that I feel like I’m grasping at straws.

    I’m currently looking through the anti-fungals and probiotics section on the site and am trying to locate a program or instructions on what and how to take all these remedies.

    Whats frustrating is so many people seem to NOT have lasting relief from any protocol. But..I’ll keep searching.

    #111910

    dvjorge
    Participant
    Topics: 283
    Replies: 1369

    Why you don’t order Candida Immune Complexes in blood from Genova Lab ??

    This blood test is the answer that you need.

    If it comes back positive, you have Candida Related Complex, if not, you have another health problem. There isn’t any endoscopy or visual test able to diagnose an intestinal fungal overgrowth. I mean intestinal no esophageal.

    This test is a definitive answer to identify this syndrome.

    Jorge.

    #111911

    wonderlover
    Member
    Topics: 4
    Replies: 22

    i wasn’t aware of the Genova Lab test. I will look it up.

    re: endoscopy, i was having pain and nausea and at the time, the Dr wanted to rule out major issues.

    The chronic nausea and dizziness are SO frustrating and i do feel like there’s some sort of something wrong in my ears/throat vestibular system.

    I’ll look up that test right now.

    #111916

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    wonderlover;50428 wrote: FYI …I’m NOT trying to be combative at ALL. I, like many other people here I’m sure, have been severely ill and am trying to find TRUTH and answers. And my body has been through so much that I feel like I’m grasping at straws.

    I understand; I hope I wasn’t coming across that way either. There’s so many people out there who claim that their advice is the one true answer, so it can be frustrating figuring out which advice to follow. Also, when you think you are someone who has, at the very least, a big piece to this puzzle, it’s a fine line you have to walk between giving advice and letting them figure it out for themselves. I hope I’m not being too overbearing; I just feel like I have some really important information that you can benefit from.

    wonderlover;50428 wrote:
    Whats frustrating is so many people seem to NOT have lasting relief from any protocol. But..I’ll keep searching.

    I want to say something in support of frequent, low-dose chelation (the Cutler protocol) though. Progress attained via (proper) chelation therapy is permanent and lasting. Once certain symptoms have been eliminated after a period of chelation, coming off of the chelators should not cause a return of symptoms. This is unlike the progress derived from any protocol involving a diet, where once you come off of the diet symptoms return. I also want to say that in my journey through the internet in an attempt to cure myself, I’ve never come across more success stories than the ones derived from frequent, low-dose chelation. To my knowledge, Able is the only person I know of who has claimed to be “cured” by diet alone.

    If you want to check out some success stories related to mercury chelation check out this thread, titan made a while back:
    http://www.thecandidadiet.com/forum/yaf_postst7527_Progress-on-Mercury-Medicine.aspx

    Also, here’s a torrent of Andy Cutler’s book Amalgam Illness that you may find interesting:
    http://kickass.to/andrew-hall-cutler-amalgam-illness-t6533350.html

    Unless you want to discuss this further I will stop beating this dead horse now and leave you to your thread. 🙂

    I’m sure there are others here who have more input to provide and I don’t want to take over your thread.

    #111917

    wonderlover
    Member
    Topics: 4
    Replies: 22

    i was already chelated and then had tests run afterwards and the mercury levels were gone … and i’ve had my amalgam fillings out so I’m not 100% positive this is mercury issues at this point. But, I will continue to pursue.

    The bad stomach issues lead me to believe it could be candida or candida related issues.

    I’m trying to find a protocol or program to start trying to heal but there’s SO much info. I’d like to try and do it naturally with natural anti-fungals so I guess I’ll just look online for some books on the subject.

    and…I appreciate ALL the input.

    #111920

    impossible
    Member
    Topics: 16
    Replies: 606

    X2 to everything TJ said. He has just completely earned my respect.

    What effect do anti-inflammatories have on you? Have you ever tried a food elimination diet? An igg test can be very revealing. Your symptoms sound as though you are mega inflamed. Some people get hit hard with that neurologically, especially if your blood brain barrier is compromised and/or you have developed neuro autoantibodies (which you can test for). I would be interested in what the genova and the hair minerals test say, as well as some of the usual cfs stuff including a hormone panel, metametrix g.i. effects test, glutathione, and even some inflammatory markers. Do you have good days and bad days? Read up on Dr Shoemaker and mold toxicity and see if you relate to any of that. If that does ring a bell, I must warn you that alot of his patients said you wont get the best care if you choose (edit) him as your doctor. Make it a point to read the post im about to put up pertaining to the methylation cycle. Is the oddness in your ears pressure? Have you noticed anything in particular that has an effect on any of your symptoms?

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