- February 15, 2015 at 5:39 pm #170712
SickofCandidaParticipantTopics: 5Replies: 8
I have posted on here before; hoping for some help.
Before I thought my problem was yeast, but after some more reading around, I think it is actually a combination of yeast, h pylori, and autoimmune issues. Looking for help as I am pretty much disabled right now and desperately need to get a handle on this. I’m a stay at home mom and my parents are the only help we have… and they are really pushing their limits to help us.
Here’s my most relevant history:
After my second child was born, everything was ok until my period started at 6 weeks (sorry, tmi, but it’s relevant). It was the day it started that I got an anaphylactic reaction to breastfeeding. My milk would let down, and my face would start swelling. Previous (before he was born), I had this strange reaction where my eye would swell shut. I had 2 miscarriages and it happened severely after each one of them. It also happened after my son was born. I realized then that it was related to the time of the month and what I ate. If I ate a lot of processed grains (yeasty foods) around my period, it was more likely to happen and be severe.
So I had this severe anaphylactic reaction to breastfeeding. I took benadryl and it did nothing. I went to urgent care and got a steriod shot and pepcid. It still kept happening. I stopped breastfeeding cold turkey, but of course, my milk kept letting down, so it kept happening. I went to the hospital by the afternoon. I got antihistamines around the clock and another shot of steriods. I filled with fluid. My legs, my arms. It felt like my arms were pushing against something painful, and then I realized, they weren’t… it was just the pressure from all the fluid under my skin. I left the hospital in the morning because it tentatively seemed like things were better. They weren’t. I continued having the reaction when my milk let down, and food seemed to be a major issue too. I went back to the hospital a couple days later. By then, I was nearly crazy from out of control anxiety caused by medications. They gave me more antihistamines and ativan.
It’s almost 4 weeks later. I am on the verge of losing my mind every night from what the meds did to my brain. I am trying to slowly get off the ativan. That is a nightmare in and of itself. Meanwhile, EVERY single thing I eat is triggering a low grade anaphylactic reactions. EVERYTHING. Even drinking water. Food also has a bizarre effect on my brain now that never used to happen. It’s like everything I eat goes straight to my brain – anything slightly sugary makes me way too giddy. Other things give me excruciating headaches. Thankfully the effects are somewhat short lived because I don’t eat much. But there is the other thing – I need to eat! And I need to eat more foods.
I am seeing every allergist I can. The allergic reaction, even after drinking water, sounds very much like h pylori from reading around on forums. After I got out of the hospital, I was taking amoxicillian for a UTI (had never tested positive for a UTI in my life). I didn’t completely finish the prescription because I was reacting to so many things… I missed a couple doses here and there. Well, after reading, one day I made myself react terribly by experimenting with a pea sized piece of pizza. It was like a bomb went off in my mouth… then the throat and eye swelling started. I took some a dose of antibiotics. I started feeling better several minutes later. The rest of the day I reacted much less.
I have battled thrush, etc for years. I think some of my symptoms are yeast related, but I think the anaphylaxsis is caused by angry h pylori.
Anyways, does anyone have insight on where I could go for help? This is beyond my control and I need some direction to specialists. I can’t try anything extreme for experimenting on my own because I’m pretty much on the verge of going crazy (for real) or dying of anaphylaxsis every day. I was encouraged in a short post about low dose allergy treatments, although… it seems that my body is producing an allergic reaction to *everything.* I did find an LDA allergist in my area and I’m going to check there.
Least reactive foods:
Chicken, Fish, bone broth made from chicken
I also eat potatoes, summer squashes, sweet potatoes, was eating blue berries in the morning – but then had a morning where it made me feel manic, so I stopped. I am in my supposedly reactive time during my cycle if I’m right about hormones influencing this, so I will try again another day. I try to eat greens (kale and spinach) too.
I have legumes here and there when I am feeling brave.
One allergist suggested I try Zrytec (however you spell it) and it was probably the worst night of my life. After that, I decided no more antihistamines… I’d rather die than go crazy. The allergist I am seeing now who seems to believe me and be more open to things… he suggested I try vitamin D, so I did… mouth erupted with ulcers, my mouth was so sore and I developed bad upper left abdomen pain. Looked it up… apparently it lowers the immune system. Makes sense that it would help with allergies, but might have given aggressive micro organisms a chance to hurt my mouth. I *carefully* gargled with olive oil and it helped immensely, but I couldn’t let it touch my throat because it felt like fire. It did make the ulcers shivel up. I stopped the vitamin D and they went away.
I am still having anaphylaxsis to emotions and other scenarios… all of them logically happen when prolactin is released (suddenly chilled, interacting with my son – super devestating, stress). Sometimes I do barely feel a let down, and sure enough, it happens.
I am doing as much testing as I can as long as it isn’t invasive. I was going to do a breath test for h pylori, but then found out you have to ingest urea. If my theory is correct, and it’s h pylori, and that aggravates it, I could die from that. So… going to hold off on that. In the hospital, my liver enzymes were elevated, and I showed signs of dehydration despite the fact that I shouldn’t have been. I continue to feel thirsty with super dry eyes even though I am drinking a ton of water (I found that if I walk while drinking, it curtails the reactions some). My liver enzymes are normally fine… the only time they have been elevated before was when I was severely ill from mono. I think my monophils also were abnormal from the hospital visit.
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