Seriously Lost – Advice Needed

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This topic contains 17 replies, has 6 voices, and was last updated by  Floggi 5 years, 3 months ago.

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  • #114227

    me2kib
    Member
    Topics: 1
    Replies: 3

    Hi all,

    I have been suffering for almost 4 years, spent much money and still no response.

    What I am suffering with now is listed in terms of severity:

    *Intense head with pressure like feeling (not in the front, so unlikely a sinus pain)
    *Burning and pain when breathing in and out (and wet clicking sound in Eustachian tubes, especially on the left side)
    *Unexplainable gum pain (that goes down sometimes, but most of the times gums are sore)
    *Random muscle twitching all over
    *Constant 24/7 clear clumpy mucus discharge (oftentimes with milky strings)
    *No appetite and something is off with digestion, since I do not have regular stools and my stomach aches and growls most of the time

    Never smoked, non-drinker, was happy and healthy until that trip to Thailand (see below, the story)

    Head, ears and neck are affected most by barely tolerable type of pain. It is as if something is slowly eating at tissue. All tests that I have gone through show nothing.

    Do you think I may have some form of Candida? Or is it unlikely?

    Have a read below as to how it all started. I am sorry about a very long post. It is a long time suffering too.

    MALE 34, no previous health problems

    Jan ’10 – got sick in Thailand (vacation) some sort of throat infection. (swollen neck lymph nodes, slight fever, swollen uvula, no appetite, difficulty swallowing), course of Amoxicillin cleared throat problem and seemed to end the problem at the time.

    Feb ’10 – slight discomfort on the right side of the jaw (lymph node), gum irritation, slight fever. Course of Avelox (5 days), no effect, difficulty swallowing reappeared, pain in right neck lymph node and slight enlargement.

    Mar’10 – pain switched to the left neck lymph node along with lymph node enlargement (the nodes are hard, but not fixed, dull pressure in ears appeared (similar to pressure when diving).

    Apr’10 – pain in lymph nodes increased, Ultra Sound of lymph nodes is clear, no malignancies, the lymph nodes are not extremely large, but constantly painful as if there is a wound inside (deep burning pain). Went to another ENT, he prescribed Ceftriaxone (10 shots 12 hours interval), the course was prescribed without any . Finished the course by the end of April.

    May’10 – after Ceftriaxone, tongue turned yellowish black, intense nasal discharge has started, the feeling in nose and throat as if everything has been cut with knife inside. The discharge appears as a clear thick mucus.

    June’10 – immense headache and head pressure added on top of the above symptoms along with muscle burning pain and muscle twitches all over body in random places with no particular pattern. Slight crackling noises appeared in ears as if bubble wraps popping. (no pain at that time yet, just popping sounds in ears).

    July’10 – feeling of fluid in ears and extreme burning pain in both ears, volumes of clear discharge and another prescribed course of antibiotics Ciprinol. Antibiotics once again had no effect.

    Aug’10 – Dec’10 – very dull headache, nausea (no vomiting, but on the verge of vomiting), extreme pain in lymph nodes, terrible headache, waking up several times during the night each night due to headache and nausea, very stiff neck and constant crackling sounds in neck when turning head, great burning pain in gums, tongue is constantly in white coating. Ear pain got so bad that it hurts when breathing in and out, since it feels like there is some object in the ear that is moving along with breathing process making a scratching sound and inflicting very unpleasant hardly bearable pain (mostly in left ear, since it is much more painful than the right, and same can be said of the left lymph node). When breathing through mouth this does not happen, but the pressure and general pain in ears persists.

    Dec’10 went back to Thailand thinking they might find something local, the doctors at Burmungrad only could come with explanation of some sort of inflammation and prescribed Zithromax for 5 days, which made no changes whatsoever.

    Jan’11-Aug’11 – still in pain, nausea, stiff neck, and overall fatigue and weakness, clear discharge (thick mucus both from throat and nose), ear pain when breathing in and out, problem with sleeping, muscle pains and twitches, neck and jaw muscles sore and painful, random gum burning at times, headache gets so bad at times that it seems that the head is about to explode, the location of the headache in the back of the head (area of skull adjacent to ears).

    #114235

    candida_sucks
    Member
    Topics: 3
    Replies: 148

    me2kib;52748 wrote: Hi all,

    I have been suffering for almost 4 years, spent much money and still no response.

    What I am suffering with now is listed in terms of severity:

    *Intense head with pressure like feeling (not in the front, so unlikely a sinus pain)
    *Burning and pain when breathing in and out (and wet clicking sound in Eustachian tubes, especially on the left side)
    *Unexplainable gum pain (that goes down sometimes, but most of the times gums are sore)
    *Random muscle twitching all over
    *Constant 24/7 clear clumpy mucus discharge (oftentimes with milky strings)
    *No appetite and something is off with digestion, since I do not have regular stools and my stomach aches and growls most of the time

    Never smoked, non-drinker, was happy and healthy until that trip to Thailand (see below, the story)

    Head, ears and neck are affected most by barely tolerable type of pain. It is as if something is slowly eating at tissue. All tests that I have gone through show nothing.

    Do you think I may have some form of Candida? Or is it unlikely?

    Have a read below as to how it all started. I am sorry about a very long post. It is a long time suffering too.

    MALE 34, no previous health problems

    Jan ’10 – got sick in Thailand (vacation) some sort of throat infection. (swollen neck lymph nodes, slight fever, swollen uvula, no appetite, difficulty swallowing), course of Amoxicillin cleared throat problem and seemed to end the problem at the time.

    Feb ’10 – slight discomfort on the right side of the jaw (lymph node), gum irritation, slight fever. Course of Avelox (5 days), no effect, difficulty swallowing reappeared, pain in right neck lymph node and slight enlargement.

    Mar’10 – pain switched to the left neck lymph node along with lymph node enlargement (the nodes are hard, but not fixed, dull pressure in ears appeared (similar to pressure when diving).

    Apr’10 – pain in lymph nodes increased, Ultra Sound of lymph nodes is clear, no malignancies, the lymph nodes are not extremely large, but constantly painful as if there is a wound inside (deep burning pain). Went to another ENT, he prescribed Ceftriaxone (10 shots 12 hours interval), the course was prescribed without any . Finished the course by the end of April.

    May’10 – after Ceftriaxone, tongue turned yellowish black, intense nasal discharge has started, the feeling in nose and throat as if everything has been cut with knife inside. The discharge appears as a clear thick mucus.

    June’10 – immense headache and head pressure added on top of the above symptoms along with muscle burning pain and muscle twitches all over body in random places with no particular pattern. Slight crackling noises appeared in ears as if bubble wraps popping. (no pain at that time yet, just popping sounds in ears).

    July’10 – feeling of fluid in ears and extreme burning pain in both ears, volumes of clear discharge and another prescribed course of antibiotics Ciprinol. Antibiotics once again had no effect.

    Aug’10 – Dec’10 – very dull headache, nausea (no vomiting, but on the verge of vomiting), extreme pain in lymph nodes, terrible headache, waking up several times during the night each night due to headache and nausea, very stiff neck and constant crackling sounds in neck when turning head, great burning pain in gums, tongue is constantly in white coating. Ear pain got so bad that it hurts when breathing in and out, since it feels like there is some object in the ear that is moving along with breathing process making a scratching sound and inflicting very unpleasant hardly bearable pain (mostly in left ear, since it is much more painful than the right, and same can be said of the left lymph node). When breathing through mouth this does not happen, but the pressure and general pain in ears persists.

    Dec’10 went back to Thailand thinking they might find something local, the doctors at Burmungrad only could come with explanation of some sort of inflammation and prescribed Zithromax for 5 days, which made no changes whatsoever.

    Jan’11-Aug’11 – still in pain, nausea, stiff neck, and overall fatigue and weakness, clear discharge (thick mucus both from throat and nose), ear pain when breathing in and out, problem with sleeping, muscle pains and twitches, neck and jaw muscles sore and painful, random gum burning at times, headache gets so bad at times that it seems that the head is about to explode, the location of the headache in the back of the head (area of skull adjacent to ears).

    Have you seen an infectious disease specialist? Someone that checks for all kinds of parasites? The fact that it all started with a trip to Thailand seems too coincidental to me. I used to watch a show called The Monsters Inside Me, and a lot of the stories were like yours. People travel abroad, get bit by some parasite-carrying bug or eat something with parasite eggs, etc, and then their life becomes hell. Doctors would be baffled, and then an infectious disease specialist would come in and figure out what parasite the person had and save the day.

    I don’t hear candida sufferers complain of lymph node swelling and some of your other symptoms, but you’ve taken a lot of antibiotics since Thailand, so you may have since acquired a candida problem in addition to your original problem.

    #114236

    me2kib
    Member
    Topics: 1
    Replies: 3

    Thank you for reply. I have seen ID specialists and they seem to make nothing of it. I do have highly elevated EBV titres, but the kind that indicates past infection, not ongoing one. I checked for parasites and apparently there is none thus far. I had Lyme test which was negative. It is just strange that it seem like it is attacking ears, throat and head, while the rest of the body seems to suffer as a result of whatever it is.

    #114237

    impossible
    Member
    Topics: 16
    Replies: 606

    Thats good advice. Also, just because the thai allopathic physicians you saw dont know (classically trained physicians everywhere generally suck with problems like this) doesnt mean another thai doc, or “naturopathic” type physician wont be able to help. That might still be a good idea. Especially if you could find one more local to you than thailand. Other diagnostic tools such as live blood analysis might help too. If all else fails, several people have actually found success with things like the bob beck protocol.

    Basically, though, dont stop searching for the right doc.

    #114240

    impossible
    Member
    Topics: 16
    Replies: 606

    If he is still available at curezone, TropicalBoy has good knowledge in this area. If not, you could study his posts for ideas.

    #114244

    Floggi
    Member
    Topics: 1
    Replies: 425

    impossible;52758 wrote: Other diagnostic tools such as live blood analysis might help too.

    Not wanting to interfere with the rest of this discussion, which contains some good points, I do like to focus on this item.

    Live blood analysis (LBA) is proven nonsense. Its diagnostic value is zero.

    #114245

    raster
    Participant
    Topics: 104
    Replies: 6838

    So I wanted to mention the possibility that you have strept. I’ve had it dozens of times and had to get my tonsils removed. The problem with strept is the only treatment is with antibiotics. It will still survive the antibiotics and so what you need to do is address repleneshing your gut flora.

    If you improve your digestion and improve your gut flora, this should kill most of the bad bugs.

    Parasite testing will likely be inconclusive. We all have parasites, but at different levels…there is no way to avoid having them and there is no way to kill them off completely within the body.

    -raster

    #114247

    impossible
    Member
    Topics: 16
    Replies: 606

    Floggi;52765 wrote:

    Other diagnostic tools such as live blood analysis might help too.

    Not wanting to interfere with the rest of this discussion, which contains some good points, I do like to focus on this item.

    Live blood analysis (LBA) is proven nonsense. Its diagnostic value is zero.

    This person/people is a pharma shill, dont listen

    #114248

    Floggi
    Member
    Topics: 1
    Replies: 425


    You make yourself sound like a conspiracy theorist when you make remarks like this.

    In addition, you’re attacking the messenger while ignoring the message.

    #114255

    me2kib
    Member
    Topics: 1
    Replies: 3

    Thank you all for the replies. What surprises me is that i have constant discharge of mucus, but oftentimes this illness just goes into overdrive mode. I get headache and burning pain to the extent that I can’t really think straight or even open my mouth wide due to tissues under the jaw being so painful. It is as if I am stuck in vicious cycle of the same sickness with random intensity. Antibiotics actually seem to aggravate problem, so does sugar and alcohol (I was naive enough to have a beer for my birthday). It is as if whatever wrong flora that is flourishing in me gets intensified with sugar and alcohol.

    In 2013 in spring, things got so bad that I had strange feeling of cold heat in what I assume would be area of lungs and liver. I started having difficulty breathing and the amount of mucus was so excessive that I kept towel at my bed to spit it out at night. I truly thought I was going to die, it was that bad and intense. I stopped eating pretty much anything, was just doing water and steamed veggies. In about a month it eased up a little, with burning in lung area becoming less prominent. However for the past week or so I had this strange bruised feeling right in the middle of the rib cage it was not difficult to breathe (other than annoying constant ear pain) but a deep breath would make that bruise recognizable. Moreover that bruised area was painful and tender to touch.

    The worst part of it that I did all the scans of lungs and head and neck, and there was nothing suspicious on MRI. So it looks like something totally took out my immune system and is wreaking havoc in my body.

    P.S. I do not know if it is relevant, but over the course of the disease, I got bad skin problems on face and head some type of dermatitis(started with a small tiny spot under my left eye). Nowhere else, just face and head. Red spots, not itchy not races, more like skin burns that become inflamed and painful, then subside and start flaking in a dandruff type of manner. The localization is always in the same area. The worse i feel, the more pronounced are the spots. I did make checks for auto immune diseases such as Lupus and apparently i am clear in that respect.

    #114257

    raster
    Participant
    Topics: 104
    Replies: 6838

    Well, I recommend going to a good naturopath like the others have mentioned. There are specific supplements that I don’t know of that can reduce and eliminate mucous.

    -raster

    #114258

    Floggi
    Member
    Topics: 1
    Replies: 425


    Have you ever had your stomach examined?

    Many of your symptoms sound as if they may originate from the stomach. I’m thinking of a stomach ulcer, gastritis, or acid reflux. Some of these may be caused by bacteria.

    #114265

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    Did you receive any vaccinations for your trip to Thailand? Many vaccinations contain thimerosal, a mercury-containing compound that can be highly dangerous for some people and cause these sorts of problems.

    #114286

    candida_sucks
    Member
    Topics: 3
    Replies: 148

    You know, a lot of your symptoms are dead-on consistent with eosinophilic meningitis, which can be caused by the rat lungworm parasite, also known as Angiostrongylus cantonensis:

    Rat lungworm

    The parasite does exist in southeast asia. Snails and slugs are an intermediate host for the larvae. The snails/slugs crawl across lettuce, etc. that eventually get eaten by humans. The worms make their way to the central nervous system and brain, causing meningitis — symptoms of severe headache, stiff neck, nausea, and more. Sound familiar?

    Did any of the infectious disease doctors test your cerebrospinal fluid?

    CS

    #114287

    candida_sucks
    Member
    Topics: 3
    Replies: 148

    candida_sucks;52807 wrote: You know, a lot of your symptoms are dead-on consistent with eosinophilic meningitis, which can be caused by the rat lungworm parasite, also known as Angiostrongylus cantonensis:

    Rat lungworm

    The parasite does exist in southeast asia. Snails and slugs are an intermediate host for the larvae. The snails/slugs crawl across lettuce, etc. that eventually get eaten by humans. The worms make their way to the central nervous system and brain, causing meningitis — symptoms of severe headache, stiff neck, nausea, and more. Sound familiar?

    Did any of the infectious disease doctors test your cerebrospinal fluid?

    CS

    Meningitis can be caused by bacteria as well. Interestingly, here is an article saying that Thailand has the highest incidence of bacterial meningitis among a certain set of countries:

    Bacterial meningitis incidence

    Not sure if the bacteria that can cause this would be resistant to any of the antibiotics you’ve already taken…

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