- January 2, 2014 at 8:51 pm #113993
I’ve been on the diet for over a year now, and am also working w/ raster’s naturopath. Before I started with my ND, I was pretty gassy, but nothing too significant. After starting with my ND, my gassyness improved a ton. However, about a week ago I started gettign gassy again, and even worse, have SIGNIFICANT bloating and stomach gurgles. My stomach is distended and feels terrible even when I haven’t eaten anything. I am beyond uncomfortable and have not experienced anything like this in my over 2 years wtih candida. I feel something else must be going on.
Could it be SIBO? If so, what do I do?
Raster– can Bernie help me with this? I don’t want to have to take antibiotics, obviously…
I take swedish bitters, HCL, and a digestive enyzme. Doesn’t help. I also gave myself 3 enemas yesterday because I can’t stand this feeling and it did nothing. I really think it has to be more than candida becuase this is brand new to me…January 2, 2014 at 10:13 pm #114002
impossibleMemberTopics: 16Replies: 606
Enemas arent going to help small bowel issues. What steroid are you taking? Are you experiencing burping after eating carbs/veges?January 2, 2014 at 10:38 pm #114005
rasterParticipantTopics: 104Replies: 6828
Well, one thing I have figured out about you is that you worry more than most people and this isn’t a healthy mindset. But I worry too and so does a lot of people with health problems. Its perfectly natural.
Is it worth it to be worried about your new symptoms? Well yes…if you say its bad, then I believe you.
What bernie would recommend and likely help figure out is what organ is acting up. Is it the small intestine? Is it the pancreas, spleen, or liver? It could be any of these and they are all related…
What types of supplements would bernie prescribe? Well, he likely would give you some standard process supplements such as zymex II, which is a digestive enzyme. I took this for the first 4-6 months I visited him and its used to treat SIBO I believe. I likely could have had it also, I never got an official diagnosis. I’d also check out peppermint oil and caraway oil.
Basically SIBO happens when specific bacteria live in a place they are not supposed to live and specific supplements can reverse it within a month or so. Antibiotics work too, but this needs to be avoided if possible.
There are some SIBO tests you can take at home and then send in to a lab, and they don’t cost too much. I just wonder whether they are as effective as going into a dr’s office or not. It sounds like they are not a problem to do on your own though:
-rasterJanuary 2, 2014 at 10:47 pm #114008
i dont eat any carbs really but i have been burping a bit more, yea. the steroids i take is hydrocortisone, but its replacement for what my body should be making. also, ive been on it 18 yrs, so it likely isnt related to this very new problem. of course, steroids never help but i cant stop themJanuary 2, 2014 at 10:57 pm #114009
impossibleMemberTopics: 16Replies: 606
yisucks;52529 wrote: i dont eat any carbs really but i have been burping a bit more, yea. the steroids i take is hydrocortisone, but its replacement for what my body should be making. also, ive been on it 18 yrs, so it likely isnt related to this very new problem. of course, steroids never help but i cant stop them
Well, ya, it might be a physiological dose once its fully absorbed, but thats not exactly a physiological dose thats occuring in your gut right after you take it. You can use it topically, I used it compounded in a highly absorbed cream made at 6%. That stuff aint helping you. I switched to that because I started to develope siboJanuary 2, 2014 at 11:56 pm #114012
kjones02ParticipantTopics: 79Replies: 315
yisucks, sometimes I think I have sibo, too. My bloating has def. improved, but it can still come and go, and usually, at the end of the day, depending on what I do, I can pass a lot of wind. Most the time I just want to go to bed straight after supper. I have more energy during the day, just wish I could make it at night, and not pass out at 6 or 7:00. Finally, I still feel I don’t tolerate probiotics that well, and I think Bernie knows it.
Plus, as raster said, worrying a lot doesn’t help, but I know easier said than done. I am a worry-wart, and I get very anxious! Last time I spoke with Bernie, he gave me some things to help with my depression and anxiety. You can look into these things, or talk to him about it, which might help calm down the stomach. Gut and mind play a big role together.
5htp, stabilium 200, serotonin dopamine liquescence.January 3, 2014 at 12:25 am #114013
kjones02ParticipantTopics: 79Replies: 315
I should note this, too. I complain about it all the time, but I think I notice gas more sometimes because I have no colon. It is 10x better, but still gets to me every day.January 3, 2014 at 12:46 am #114014
I Do tend to worry, you are right. With this, I’m just very uncomfortable which increases my urgency. Its just not something I’ve experienced before…at least not for a week straight so I just want to feel better. Also, I do get a bit frustrated and wish this process would move faster. I know I’m preaching to the choir, but a year and a half on this diet is a real commitment and I just wish I saw better results. If I was overweight and on a diet for this long, I would certainly be able to boost about my weight loss success. I guess I’m just being impatient.
I’m glad Bernie is familiar with SIBO and has other supplements because my stuff ain’t working! Though, I do think I feel better momentarily after some oil of oregano.
Luckily I have a call with him tomorrow so I’ll see what he thinks. If the only conventional treatment is antibiotics, that’s really not an option for me anyway so maybe Bernie can recommend some things that may help if its that and I’ll see if it worksMarch 7, 2014 at 8:55 am #116551
Katemate3MemberTopics: 14Replies: 48
Yisucks what happened, did you speak to Bernie? What supplements/medication did he recommend instead of antibiotics for the treatment of SIBO? Your answer is much appreciated!March 7, 2014 at 2:24 pm #116553
rambolincolnMemberTopics: 4Replies: 12
I researched a ton about Sibo for the past six months I thought I had it. I was obsessed with the topic.
Firstly, it’s important to get a diagnosis. For a diagnosis you can ask your GI doctor for a Hydrogen Breath Test. Make sure to get a Hydrogen Breath Test with Methane for greater accuracy. Basically bacteria produce Hydrogen and sometimes Methane and the test will measure the levels coming out of your intestines after you drink solutions that react with it. Unfortunately the Hydrogen Breath Test is only accurate maybe 70% of the time, however, and have a high false-positives and false-negatives. There are some bacteria that produce other substances that there are no current tests for.
There are other ways of testing if you have sibo at home, in cases where you are constantly bloated and have lots of heartburn, with many bad reactions to food. I saw a sibo specialist and he told me that a good test is to wait at least 8 hours after eating a meal and then eat a plain piece of chicken and nothing else as a meal, to see if your body reacts to it. If there is no reaction or bloating, then there is a good possibility it is sibo. If you do get bloating and a reaction then it is probably something else you need to look into.
You will need to be concerned with other possibilities for your discomfort. You might have an obstruction in your bowel or small intestine, for example. You could have an inflammatory bowel disease. You would need to get a colonoscopy for your bowel and further tests on your small intestine to cover that. Your GI doctor may also want you to do an endoscopy. This will be a lengthy process. I would suggest pushing your GI to do the colonoscopy and endoscopy at the same time. Those types of procedures are typically hard to schedule in a timely manner and you may be waiting for four months in pain, like I was. The breath test is also hard to schedule, and you might want to make some calls and shop around and ask about the waiting times for those tests. Unfortunately the GI doctor will usually want a consultation before signing you up for the test. I was able to get my primary doctor to call a GI doctor she knew and get me an appointment for the test the next week without a consultation.
For SIBO treatment I would look into the Rifaximin antibiotic. Sometimes GI doctors will give you the antibiotic treatment regardless of what the breath test shows, just to rule it out. It’s the only antibiotic for SIBO which is not absorbed by the body and stays concentrated in the gut on the surface. Check your insurance and see if they carry it in their formulary. It’s a very expensive drug – about $1000 for a 10 day course. Treatment for SIBO isn’t an FDA approved treament, and many insurance companies will deny you. Sometimes it goes through, however. My insurance formulary covered it and my cost was $90. There is also a co-payment coupon on the manufacturer’s website that will get you $100 off your copay. I was able to pick up my prescription for zero cost.
As per my own reaction to Rifaximin, when I got it I did not feel that it was being absorbed into my body as I’ve felt with other antibiorics. I agree with the assessment that it is the safest antibiotic out there.
Natural remedies would be enteric coasted peppermint. There is evidence that peppermint helps with SIBO. Make sure you get an enteric coated peppermint so that it survives the stomach into the intestines. I would suggest following the protocol and dosage in this study: http://www.altmedrev.com/publications/7/5/410.pdf
If you are serious about sibo, and want it treated today, I would buy enteric coated peppermint today as a small test for improvement. Regardless of results, I would follow up with a GI doctor.
Unfortunately, gathering evidence that you have sibo is only the beginning of your journey. After taking these supplements or antibiotics and seeing improvement, it very usually comes back after a few weeks to a few months. There is something wrong with your body that causes this overgrowth to occur. These overgrowths do not occur in a healthy gut. It could be low motility, low stomach acid, a neurological or muscular disease, partial or intermittent obstruction of the small intestine, Diverticuli (small pouches) of the small intestine that allow bacteria to multiply inside diverticuli. The only way to treat the cause, as far as I am aware, is to go to a traditional GI doctor for various tests.
The most important thing right now, however, is to figure out if you have SIBO or not. When doing your enema, do you ever see any yeast-type structures coming out of you? Have you seen it in the toilet after a BM? Yeast structures may be indicative of a candida overgrowth, since you’ve had it in the past.March 7, 2014 at 4:39 pm #116554
Tdog333MemberTopics: 25Replies: 245
Thanks for posting that article, it was interesting how FM CFS and IBS tie together based on SIBO.
Something else to be aware of is that SIFO exists too, often caused by candida.
This could explain why “it always seems to come back within a few weeks to a few months”
In that study 63% of people on PPI’s or with dysmotility had either SIBO/SIFO, or a mix between the two.
This study is good too look for TUL1376(you will need to click the magnifying glass in the bottom right corner, the text is small)
Basically around 63% of people with digestive issues had some overgrowth, 19% had SIFO 19% had mixed SIBO/SIFO and 25% had SIBO.
What interesting is that EVERYONE who had SIFO grew candida from a culture.
I think it’s something we should all look into more, as most of us seem to have issues with eating certain foods, or digestion altogether. And the fact that 3/5 people with digestion trouble had SIBO/SIFO, those are pretty high odds.
I’m still trying to come up with ways to get rid of SIFO and SIBO together, since I’m not sure how effective peppermint oil is against yeast/fungus. I think one cause of this that hasn’t really been mentioned is gallbladder/liver problems. Bile released by the GB/Liver is supposed to keep the small intestine sterile from what I’ve read. So maybe there is some problem there.March 7, 2014 at 5:49 pm #116556
rasterParticipantTopics: 104Replies: 6828
Have you done any testing for SIBO to see whether you have it or have you taken any action on this subject?
-rasterMarch 8, 2014 at 8:20 pm #116598
Bernie didnt seem to think thats what I have. the bloating mainly went away, though i am a bit today for the first time in a while. it happened after eating lamb, and lasted a while. We think thats why. I guess my body couldnt handle it.im hopeful i dont actually have that but ill ask him againMarch 8, 2014 at 8:49 pm #116600
I actually had an apt with a GI Dr scheduled but cancelled it. Maybe I should try for that again.March 17, 2014 at 8:44 pm #116986
All, I scheduled an appt with a GI doctor. I had that bloating in January that lasted a couple weeks and went away. It came back strong a little over a week ago and won’t quit. I can’t figure out what caused it, because I haven’t changed my diet at all. I am definitely concerned about SIBO. They won’t do the breath test until I get a consult so I’ll see what the dr. thinks. I know I have an overgrowth of bacteria in my body because my naturopath feels that way plus I have chronic BV (bacterial vaginosis) so somehow, SIBO wouldnt surprise me much. I recently started peppermint oil, and while soothing, hasn’t made me feel too much better yet. granted, it’s only day 2.
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