1 Year in Candida Diet still can't function – PLEASE HELP

Home The Candida Forum Candida Advice 1 Year in Candida Diet still can't function – PLEASE HELP

This topic contains 77 replies, has 18 voices, and was last updated by  Vegan Catlady 5 years, 1 month ago.

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  • #114170

    annieamanda
    Member
    Topics: 2
    Replies: 19

    I have been sick (like not able to leave my house sick) for over 2 years now.

    Started GAPS diet soon after – been on GAPS diet for 1 year 8 months now.

    Spent entire life savings on every doctor and specialist in CA (8 MRIs, allergy tests, CT scans, etc). Been to 6 different homeopaths, accupuncture, chiropractor, reiki – you name it I’ve tried it. Flew out and spent two months admitted to the Cleveland Clinic.

    Diagnosed with systemic Candida (at cleveland clinic) 1.5 years ago. Followed by 3 months of prescription anti fungal 2x a day. Along with Candida Diet (on top of GAPS) and supplements (l-glutamine, fish oil, coconut oil, etc). Daily coffee enema.

    Still struggled with daily symptoms or I would get better for no longer than 3 days then all my symptoms would come back (no cheating – EVER!). After 6 months GAPS/Candida I started BodyEcology diet. Symptoms got worse even after 6 months.

    Now 1.5 years later I’m still GAPS/Candida and now I think I have a Salicylate sensitivity on top of everything. Still daily symptoms – still can’t leave house. Still too dizzy to walk from room to room most days. Still brain fog and feels like stroke symptoms after eating.

    Had to give up all kraut, supplements and coconut oil because of salicylate sensitivity.

    All 3 gastro docs, intregrative specialist at cleveland clinic and homeopaths all have now given up and each in turn has asked I not make new appointments (seriously, each in their own way said “I can’t help you anymore – go see your primary doctor”). Primary doctor threw his hands up over a year ago and said “just keep searching”

    I am down to 5 foods I can eat (and still have symptoms everyday). Leeks, cauliflower, iceberg lettuce and fermented raw milk viilli yogurt. Even chicken broth gives me symptoms of asthma, brain fog and stroke now.

    Still have candida overgrowth.

    Truly at a loss! Please help!!!

    #114171

    annieamanda
    Member
    Topics: 2
    Replies: 19

    PS.

    No amalgam fillings. Done chelation for 4 months and Alpha Liopic Acid for 6 months. Didn’t help.

    Taken homeopathic supplements for parasites, viruses and etc. Didn’t help.

    #114192

    Wiley200
    Participant
    Topics: 2
    Replies: 386

    Have you looked into to hormone imbalances such as low cortisol or low thyroid hormone.

    #114198

    annieamanda
    Member
    Topics: 2
    Replies: 19

    Wiley200 – Thank you for the reply.

    Yes, I have had my thyroid tested 4 times in the past 2 years. All tests normal.

    Someone suggested I try the Raw Milk diet. Is that beneficial for Candida?

    My diet now is 75% viili yogurt fermented from raw milk. When combining the Candida and Histamine/Salicylate diet I’m left with:

    asparagus
    cauliflower
    green beans
    beef (allergic to chicken and eggs)
    leeks
    celery
    iceberg lettuce

    I still take Vitamin C, B12, Amazing Foods scoop in the am, Zypan (digestive enzyme with HCL)

    And absolutely no supplements to combat candida like coconut oil or grapefruit extract. Has anyone dealt with both? Any ideas on how to treat both?

    Am incredibly depressed with suicidal thoughts. I tried eating a handful of almonds 2 weeks ago which brought on throbbing colon (diverticulitis likely) with migraine headache that lasted 6 hours a day for 7 days straight after eating anything at all even water. They got so bad I woke up from being unconscious for about 10 minutes a couple times. Wished I hadn’t woken up at all.

    amanda

    #114204

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    First off, sorry to hear you’re doing so poorly. Having suicidal thoughts has got to be terrible, but I urge you to stay strong and keep looking for answers.

    When you chelated with ALA did you chelate according to the Andy Cutler protocol with an every 3 hour dosing schedule? If you have a mercury problem and take infrequent doses of ALA you can make the problem worse by inadvertently moving mercury into the brain. This can cause depression and suicidal thoughts like you mentioned.

    #114205

    TheChosenOne
    Participant
    Topics: 34
    Replies: 410

    What TomasJoel2 said. Improper chelating can significantly worsen your situation.
    Have you been diagnosed with mercury poisoning?
    When was the last time you have been diagnosed with candida?
    Why do you eat such a low variety of food?

    #114208

    annieamanda
    Member
    Topics: 2
    Replies: 19

    How do I do a mercury poison test? Through my primary doctor?

    I haven’t been diagnosed with candida since cleveland a year ago but I continue to have symptoms (raging yeast infections, brain fog, short and long term memory issues, etc) and the spit test is always positive for candida.

    My low variety of food is based on a combination of GAPS, Candida and Salicylate diets. Whenever I try to add anything my symptoms get exponentially worse: uncontrollable dizziness, migraines that last for 5-7 days, spastic colon, severe back pain (I’ve spontaneously ruptured 1 disc and herniated 3 more), stroke like feeling and much more – I just can’t get my brain to form the words.

    #114209

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    annieamanda;52729 wrote: How do I do a mercury poison test? Through my primary doctor?

    I haven’t been diagnosed with candida since cleveland a year ago but I continue to have symptoms (raging yeast infections, brain fog, short and long term memory issues, etc) and the spit test is always positive for candida.

    My low variety of food is based on a combination of GAPS, Candida and Salicylate diets. Whenever I try to add anything my symptoms get exponentially worse: uncontrollable dizziness, migraines that last for 5-7 days, spastic colon, severe back pain (I’ve spontaneously ruptured 1 disc and herniated 3 more), stroke like feeling and much more – I just can’t get my brain to form the words.

    The best test for mercury is a hair elements analysis test, which you can order online without going through a doctor. Here’s a link: http://www.integrativepsychiatry.net/hair_elements_hair_analysis_test.html If you were to go to your primary doctor and ask to be tested for mercury they would likely give you a blood test which is an ineffective diagnostic tool. Since mercury is stored in various bodily tissue, a blood test would only be useful in the case of an acute exposure.

    What was you’re dosing schedule when you used ALA? The reason I ask is because if you take ALA improperly (anything other than an every 3 hour dosing schedule) and you have a mercury problem you can make yourself significantly worse by moving mercury into your brain. This would explain the neurological symptoms you’re currently experiencing.

    If you did use ALA on an improper dosing schedule I highly recommend you check out Andy Cutler’s chelation protocol. He has two books that are must-reads if you are mercury toxic: Amalgam Illness and Hair Test Interpretation. I should mention that I’m not in any way financially tied to Cutler, I just think if you’re going to chelate his protocol is by far the safest and most effective method presently known. I will also add that just because you don’t have any amalgams doesn’t mean you aren’t mercury toxic. Mercury exposure can come from other sources: toxicity passed in utero (if you’re mom had mercury toxicity/amalgam fillings), fish, vaccines, flu shots or other inoculations. I became poisoned after eating a high fish diet and am currently convinced that mercury is the major catalyst behind my health problems and that chelation is a necessary and major part of the eventual solution.

    Here’s a torrent of Cutler’s Amalgam Illness, in case you’re strapped for money: http://kickass.to/andrew-hall-cutler-amalgam-illness-t6533350.html

    #114216

    Vegan Catlady
    Member
    Topics: 34
    Replies: 626

    annieamanda;52691 wrote: I have been sick (like not able to leave my house sick) for over 2 years now.

    Started GAPS diet soon after – been on GAPS diet for 1 year 8 months now.

    Spent entire life savings on every doctor and specialist in CA (8 MRIs, allergy tests, CT scans, etc). Been to 6 different homeopaths, accupuncture, chiropractor, reiki – you name it I’ve tried it. Flew out and spent two months admitted to the Cleveland Clinic.

    Diagnosed with systemic Candida (at cleveland clinic) 1.5 years ago. Followed by 3 months of prescription anti fungal 2x a day. Along with Candida Diet (on top of GAPS) and supplements (l-glutamine, fish oil, coconut oil, etc). Daily coffee enema.

    Still struggled with daily symptoms or I would get better for no longer than 3 days then all my symptoms would come back (no cheating – EVER!). After 6 months GAPS/Candida I started BodyEcology diet. Symptoms got worse even after 6 months.

    Now 1.5 years later I’m still GAPS/Candida and now I think I have a Salicylate sensitivity on top of everything. Still daily symptoms – still can’t leave house. Still too dizzy to walk from room to room most days. Still brain fog and feels like stroke symptoms after eating.

    Had to give up all kraut, supplements and coconut oil because of salicylate sensitivity.

    All 3 gastro docs, intregrative specialist at cleveland clinic and homeopaths all have now given up and each in turn has asked I not make new appointments (seriously, each in their own way said “I can’t help you anymore – go see your primary doctor”). Primary doctor threw his hands up over a year ago and said “just keep searching”

    I am down to 5 foods I can eat (and still have symptoms everyday). Leeks, cauliflower, iceberg lettuce and fermented raw milk viilli yogurt. Even chicken broth gives me symptoms of asthma, brain fog and stroke now.

    Still have candida overgrowth.

    Truly at a loss! Please help!!!

    I hope this proves that limiting our diets might offer some symptom relief- but it does NOTHING for the candida! You cant starve it! It adapts!

    I am no authority and havent been suffering for years yet, just months, but I refuse to live low carb.
    The reason is that it seems the longer I eat low carb, the sharper the punishment is when a food is too high in natural sugar.

    I believe eating low carb teaches our bodies to exaggerate our reaction to sugar, and limit our diets further. This cant be the answer.

    Our immune systems demands calories. Any clue how much lettuce and cauliflower you need to eat just to maintain breathing? I have a clue. Going raw vegan for a little while teaches you to consume on a much larger scale.

    No one hear is going to get any relief when they are restricting calories.
    I dont know much, but I do know that. Just stressing eats calories.

    Our brains need glucose. Thats what im told. We aint getting glucose on a low carb diet unless we eat more. I can see this candida diet working if the consumption of calories is adequate.

    I was getting terribly depressed about this.

    I got mad and said screw it and ate an entire pomegranate tonight.
    Im waiting for hells bells,no lie.

    Turns out, pomegranate might be slightly anti-fungal…the sugar elicited only a slight reaction (although the reaction could be heartburn,too, from a messed up diet that has transitioned from raw to whatever-will-not-make-me-postal.) BUT the fructose changed my attitude 100% and tonight I will not panic-attack myself to sleep.

    Point isnt to throw your hands up and eat fruit, but to consider experimenting with small bites of different high calorie foods to keep your brain and immune system happy.

    When was the last time you had a blood panel done?
    Have you had your vitamin levels checked, like D and Iron and B12?
    I know that some people take supplements but never absorb what they take thanks to yeast or whatever, so they really arent catching up on any deficits.

    Even though Dr. Jeff McCombs doesnt cater to a vegan, his candida plan makes sense to me.
    Of course im new, so maybe I will find it useless over time…but I like his theory that we have to keep candida from fighting our antifungals by allowing the yeast to live, and keeping it from from transitioning to its fungal form.

    I think Low carbing makes it go fungal because its freaking out for food…and then it stays this way and makes us terribly ill. I mean, a pomegranate shouldnt give someone heartburn.
    Not normal.

    I hope you get relief <3

    #114223

    stovariste
    Member
    Topics: 12
    Replies: 116

    Sorry to hear about your state, but you should be aware that this kind of post you wrote is really common here, so we’re used to it. DONT GIVE UP! :-).

    This forum has some great topics which you should research by spending hours and days first, and then realize where you made mistake in past few years… you start here:

    http://www.thecandidadiet.com/forum/yaf_postst4622_Useful-Links-and-Forum-Posts.aspx

    Data you find in that url, must not be true, but you will find people which had same problems like you do.

    Alternatively, but I suggest you not to read this link until you take on with those in link above, Raster made great compilation post for alternative ways:

    http://www.thecandidadiet.com/forum/yaf_postsm52184_Alternative-methods-to-get-better-if-you-reach-a-dead-end-in-your-treatmen-raster-s-perspective.aspx#post52184

    Finally, try to search posts from Able (who is no longer in forum unfortunately, but he directly helped lots of people to find relief), DvJorge (usually everything he writes has medical research background and has great points as well!), Raster (which is also a sufferer, but he has ability to visit ND in his town which knows how to threat Candida and its his main knowledge source. You may ask him about his ND contact since the guy is also treating remotely as well) and Impossible which find his cure in Methylation cycles fix (you will read about it in links above). They all usually make good points… so take your time and have faith.
    Best Luck

    #114225

    TheChosenOne
    Participant
    Topics: 34
    Replies: 410

    annieamanda;52729 wrote: I haven’t been diagnosed with candida since cleveland a year ago but I continue to have symptoms (raging yeast infections, brain fog, short and long term memory issues, etc) and the spit test is always positive for candida.

    The spit test is total bogus and is not reliable. The fact that you are still suffering so much from candida is not really normal after more than a year. Something else must be wrong. I guess that either your liver is completely broken and can’t handle all the toxins that are being released by the candida, which made your problems worse. Did you take supplements to support your liver?
    Or you have have some serious immune problems. You should check your adrenals and/or your thyroid.

    Vegan Catlady;52737 wrote: Our immune systems demands calories. Any clue how much lettuce and cauliflower you need to eat just to maintain breathing? I have a clue. Going raw vegan for a little while teaches you to consume on a much larger scale.

    No one hear is going to get any relief when they are restricting calories.
    I dont know much, but I do know that. Just stressing eats calories.

    Our brains need glucose. Thats what im told. We aint getting glucose on a low carb diet unless we eat more. I can see this candida diet working if the consumption of calories is adequate.

    The candida diet is not an anti-carbs or anti-calorie diet. It’s an anti-sugar diet. That’s a big difference. You have to eat lots of calories on this diet, otherwise your body is going to starve, which will do more harm than good.
    You can get these from a variety of oils and a variety of high fiber meals like coconut flour, oat bran, buckwheat, ….

    #114233

    Tdog333
    Member
    Topics: 25
    Replies: 245

    TheChosenOne;52746 wrote:
    The spit test is total bogus and is not reliable. The fact that you are still suffering so much from candida is not really normal after more than a year. Something else must be wrong. I guess that either your liver is completely broken and can’t handle all the toxins that are being released by the candida, which made your problems worse. Did you take supplements to support your liver?
    Or you have have some serious immune problems. You should check your adrenals and/or your thyroid.

    I agree, just take your body temp a few times a day for the next couple days and see what it’s at. That’s one of the best ways to see how your thyroid is doing. When I first started I was around 95.8-96.0 now I’m around 97-98.

    Look into buying a bile acid supplement, jarrow makes a good one called bile acid factors. The liver is a catch 22, it can completely regrow and heal itself, but only effectively in the presence of bile. So if your liver is already damaged and bile production is low it wont heal as quickly. Supplementing with bile will trigger it to heal. It will also help to sanitize your small intestine and I’m almost positive you have stuff in there that should not be there.

    I think it’s also important to look into how your body is detoxing. Are you helping it? Sauna, rebounding, massage, bowel movements(at least 2 a day)? I think impossible has said that some people genetically can’t detox certain mycotoxins, I don’t know enough about that but maybe if he reads this he can give more info.

    #114254

    annieamanda
    Member
    Topics: 2
    Replies: 19

    Thanks guys – I am looking into hair testing for mercury. I was tested months ago with muscle testing and it came out negative – but going to give it another go with hair analysis.

    Amanda

    #114256

    raster
    Participant
    Topics: 104
    Replies: 6838

    So you need to tell us what supplements you have tried and complications you have had from them.

    Another thing to keep in mind is that all of this testing does not always indicate a problem…for instance you could still have a thyroid problem even though it doesn’t show up in the test. The testing can be completely inconclusive as you can see…

    You are starving yourself by limiting the foods you eat and you need to start branching out some if possible.

    Have you tried SF722 undecenoic acid?

    If you want to go to my naturopath here in Portland, he can treat people remotely. I’ve sent 4-5 other forum members to him who have reached dead ends and he has helped them all.

    Another thing I would do is stop panicking! This is a long term battle and don’t worry about the past 2 years…

    Have you tried anything to reduce the histamine levels? Have you tried allergy shots?

    It sounds like you are dealing with real bad leaky gut. One thing my naturopath stated about the reactions you have is that you are getting better not getting worse. Your body has become pretty clean and so anything can upset it. Its normal to react to sugar, alcohol, etc.

    What kinds of homeopathics have you tried? What manufacturers?

    -raster

    #114262

    ThomasJoel2
    Participant
    Topics: 9
    Replies: 375

    annieamanda;52775 wrote: Thanks guys – I am looking into hair testing for mercury. I was tested months ago with muscle testing and it came out negative – but going to give it another go with hair analysis.

    Amanda

    I’m glad to hear you’re looking into the hair test. I should tell you that when/if you get your results back you can’t just look at the levels of mercury being excreted in your hair in order to diagnose mercury toxicity. Often those with the most severe mercury toxicity (like autistic children) show very low levels of mercury on their hair test yet they remain highly toxic. The reason for this is that their body is so overwhelmed that they can’t excrete hardly any mercury at all.

    Because of this one has to look for deranged mineral transport which only occurs in mercury toxic or pregnant/lactating women. A hair test can be used to look for deranged mineral transport fortunately, via the use of the counting rules which Andy Cutler developed. His second book Hair Test Interpretation explains how the counting rules works, but they are also explained online. Here’s a link which explains them thoroughly: http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

    You also might want to check out this website as it’s another valuable resource: http://www.livingnetwork.co.za/chelationnetwork/chelation-the-andy-cutler-protocol/

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