Hi. I’m sorry to hear about all the trouble you’re having with your bowels. They’re a definite nuisance. Mine have bothered me my entire life, but I have the opposite problem.
I have a question for you. Did your GI doctor check for eosinophils? I’m only asking because I was diagnosed with an eosinophil disorder (eosinophilic esophagitis) five years ago and I’ve heard of people that have eosinophilic gastroenteritis that have the same symptoms you’re having. Perhaps your GI doctor didn’t check for eosinophils because eosinophilic disorders are a ‘new’ thing; doctors and scientists have only known about them for 10 years or so.
If you do find out that you have an eosinophilic disorder, I’m sorry to say that there’s not much in the way of treatment options. Steroids seem to be the drug of choice to stem the inflammation, which, by the way, I refused. There’s also Singular, which didn’t work for me. Or you can keep on doing what you’re doing (and what I’m doing) – avoiding the foods that cause the problem and praying that someone somewhere finds the cause and cure for this disorder.
I just had a thought. I’m wondering if Benadryl would help you. It helps me when I’m having an EE episode. Keeps the inflammation and eosinophils calmed down.